This BLOG is a window into our life for our family & friends that can't always be with us to see our ever changing world.
Monday, April 28, 2014
Sunday, April 27, 2014
Baby K'Tan Wrap: BEST Wrap for Babies With Special Needs!
I originally saw this wrap with a mom at the library when I was 5 months pregnant. I asked her about it and I soon forgot what she said and the name of her wrap. I did that a lot during my pregnancy. LOL! So when people asked me what "baby essentials" I wanted I told them for sure I want a Moby Wrap. But once I tried to use it a couple of times just practicing with a stuffed animal, I quickly realized this isn't what I wanted. And I remembered the conversation I had with that sweet mama in the library. She was using a Moby alternative, so that's what I googled. I found the Baby K'Tan! That's what the mama used. There's NO wrapping. Ahhh...what a relief, for me. But the best part is that as I started researching the wrap I realized how special it is. It came to be from a mama who's son has Downs Syndrome. She was looking for an easier and less harmful way (due to the hypotonia) to baby wear her special needs son. I couldn't believe it! It's almost like God was telling me all along, little pieces here and there, that I too would have an extra special baby which I definitely wanted to "wear".
Check out the link and read their story. So sorry Moby-I got a K'Tan...and WE LOVE IT!
http://www.huffingtonpost.com/2012/05/11/michal-chesal-baby-ktan_n_1495666.html
Monday, April 21, 2014
Saturday, April 19, 2014
Welcome To Holland
This is an excerpt from the Down Syndrome Partnership of North Texas. It sums up my feelings of my delivery of Sean and the shock I went through with him being in the hospital as well as my occasional feelings of uncertainty at raising a super special baby with special needs.
Welcome to Holland
I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this… When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The flight attendant comes in and says, “Welcome to Holland.” “Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.” But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay. The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…and you begin to notice that Holland has windmills…and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy…and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.” And the pain of that will never, ever, ever, ever go away…because the loss of that dream is a very, very significant loss. But…if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things…about Holland.
by Emily Perl Kingsley
©1987. All Rights Reserved.
Welcome to Holland
I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this… When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The flight attendant comes in and says, “Welcome to Holland.” “Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.” But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay. The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…and you begin to notice that Holland has windmills…and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy…and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.” And the pain of that will never, ever, ever, ever go away…because the loss of that dream is a very, very significant loss. But…if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things…about Holland.
by Emily Perl Kingsley
©1987. All Rights Reserved.
Friday, April 18, 2014
Tuesday, April 15, 2014
Melanie Defends the Bakyard Against Robots?
Monday, April 14, 2014
Saturday, April 12, 2014
Crazy Texas Weather
Check out this video from last week...CRAZY! Melanie was having a field day though. She was super intrigued at the hail. YIKES!
Thursday, April 10, 2014
An (almost) Toothless Grin
Thursday, April 3, 2014
My Breastfriend Pillow
Tuesday, April 1, 2014
Sean's First Day Home
We had such an AWESOME reception when we got home. Rebekah with her children & Melanie were with us & made a welcome sign and bought us balloons. Alli and her children were waiting for us with their welcome signs. Bahar and her son were waiting for us, along with my neighbor friend Ms. Eva. I couldn't believe the reception! So amazing!! It is such a miraculous feeling to be home!
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Someone's alert & taking in all the new sights, smells & noise.
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